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Glossary of Terms and FAQs

Abdominal Migraine

Unexplained abdominal pain – with anorexia, nausea, vomiting and pallor – and no symptoms between attacks

 

Alice-in-Wonderland Syndrome

A feeling or perception of one’s own body parts incorrectly

 

Allodynia

A nerve-related condition where pain is felt from stimuli that do not normally cause the sensation of pain, such as warm or cold temperatures or gentle pressure on the skin

 

Ataxia

Persistent sense of imbalance

 

Autonomic Nasal Dysfunction

Unexplained nasal congestion and a runny nose

 

Central Auditory Processing Disorder

Difficulty in understanding what people are saying, despite having a normal hearing test

 

Chronic Sinusitis

Pressure or pain across the forehead, behind the eyes or across the face that occurs frequently

 

Colic

Inconsolable crying, tense abdominal muscles, clenched fists and curled legs, often after eating in babies

 

Expressive Apraxia

Difficulty speaking sometimes without another explanation

 

Fibromyalgia

Chronic widespread pain and tenderness

 

Gastroparesis

Nausea, vomiting, belching, bloating, abdominal discomfort

 

Irritable bowel syndrome

Abdominal pain and bloating, associated with bowel movements

Mal de Debarquement

A persistent feeling of the ground moving, especially after getting off a boat

 

Neurogenic cough

An unexplained dry persistent cough

 

Oromandibular Dystonia

Forceful contractions of the face, jaw, and/or tongue causing difficulty in opening and closing the mouth and often affecting chewing and speech

 

Osmophobia

Sensitivity to smells

 

Phantosmia

Detecting awful smells that others do not

 

Presenteeism

Being on the job but, because of illness or other medical conditions, not fully functioning.

Restless Leg Syndrome

Sleep disturbances, such as difficulty sleeping (central sleep disorder) or the urge to move one’s legs or odd leg feelings

 

Temporomandibular pain

Stabbing pain around and deep in one ear

 

Tinnitus

A hissing, ringing or other noise in the ear that others do not hear

 

Vulvodynia

Burning, stinging or pain in the vaginal region

What can the Association of Migraine Disorders (AMD) do to help me?

We do not provide individual treatment recommendations.  We provide the tools to pursue new activities, learn more about your condition, provide a community, a hub of connections to resources.

 

What can I do if nothing works?

Everyone who works on the AMD team is devoted to finding a better life for you.

Make sure that you have reviewed the full range of options, particularly new medications and therapies, with a headache specialist

Channel that frustration into some positive energy.

  • Consider recording your personal story and send it to us as an essay, piece of art or video with permission for us to share it on our website and other social media
  • Consider becoming a member of Team Migraine
  • Join us for one of our AMD events
  • Start a local chapter of AMD
  • Develop your own fundraising event

 

Are there alternatives to taking medications for my migraine symptoms?

While we do believe that there are specific flaws in our bodies that predispose some people more than others to migraine symptoms, this does not mean that AMD believes that medication is the only solution to controlling this disease.  There are many lifestyle changes, including dietary changes, which are known to be effective.  There are alternative therapies, such as cognitive behavioral therapy, biofeedback, and stress reduction, which are known to help.  Some supplements, such as riboflavin, magnesium, and feverfew, can be safe and effective.  And there are different forms of electromodulation and Botox.